Publications

Withdrawal of Assisted Ventilation at the Request of a Patient with Motor Neurone Disease


Withdrawal of assisted ventilation at the request of a patient with MND

The APM have published Guidance for professionals in this complex area of care. Many of you will have contributed either to the research or the consultation about this work which was lead by Christina Faull. The Guidance was developed by a multi professional and inter speciality group and there has been opportunity to present the work at British Thoracic Society and home ventilation group meetings nationally. The Guidance is already endorsed by Hospice UK and the RCN and the GMC have affirmed it is consistent with standards of good practice. Broader endorsement is being sought to safeguard patients and families and support professionals.

The Guidance calls for ongoing collation of a core dataset
This audit aims to include patients with a breadth of diseases that require assisted ventilation and is not restricted to those with MND. Further information and instructions for this can be seen here Audit of Process and Outcomes. Data can be submitted by downloading and completing this PDF or contacting Becki Munro for a word or spreadsheet version to complete electronically.
Once completed please email to LAR.ventilation@nhs.net or post to Dr Christina Faull, LOROS, Groby Road, Leicester LE3 9QE

Please contact Becki Munro for the Word and Excel versions of these documents.

Becki Munro also holds a list of people with experience who would be willing to support anyone who is undertaking this with a patient.

Withdrawal of Ventilatory Support at the Request of an Adult Patient with Neuro-muscular Disease

Association for Palliative Medicine Position Statement
November 2015