The Special interest forum for Transition and young adult palliative care is led by Jo Elverson and is open to any clinician who is interested in the care of young adults with life-limiting conditions.
Click here to learn more about the group and find helpful links and resources.
Terms of Reference: Transition TOR Updated 2020
Palliative care for the “Inbetweeners”
You may have seen the new report from NCEPOD looking at the quality of care of patients during the transition from children’s to adult services. This is particularly relevant to palliative medicine as over 40% of cases reviewed were identified as having a life-limiting condition. The report identifies the lack of clear transition pathway, the fragmented communication between services, and the need for patient-centred planning which is appropriate to the individual’s developmental stage.
The overwhelming message of the report is that Transition is everybody’s business! Whether we occasionally form part of the MDT around a young person or regularly take a lead role in their care, we all need to look at how we can contribute to improving the experience of transition.
If you want to learn more: Together for Short Lives have recently updated their guidance for transition to adult services for people with life-limiting conditions.
The Association of Paediatric Palliative Medicine (APPM) annual study day on November 17th will focus on transition.